Research and evaluation

Here are a few academic papers relating to this work. All of the papers are available for free (open access).

• Page B, Butler S, Smith C, Lee, A & Vincent C. Training and support for caring for a child’s gastrostomy: a survey with family carers. BMJ Paediatrics Open 2021;5:e001068.

 Full text Training and support for caring for a child's gastrostomy: a survey with family carers

• Page B, Nawaz R, Haden S, Vincent C & Lee A. Paediatric enteral feeding at home: an analysis of patient safety incidents. Archives of Disease in Childhood 2019;104:1174-1180.

 Full text Paediatric enteral feeding at home: an analysis of patient safety incidents

• Page, BF, Hinton, L, Harrop, E & Vincent, C. The challenges of caring for children who require complex medical care at home: ‘The go between for everyone is the parent and as the parent that’s an awful lot of responsibility’. Health Expectations 2020; 23: 1144– 1154.

Full text The challenges of caring for children who require complex medical care at home

• Page, B, Lee, ACH, Harrop, EJ, et al. Coproducing a library of videos to support families caring for children with gastrostomies: a mixed-methods evaluation with family carers and clinicians. Health Expect. 2022; 1- 10. 

Full text Coproducing a library of videos to support families caring for children with gastrostomies