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Supporting parents to care for children with medical complexity

Families are doing complex healthcare procedures at home (e.g. feeding tubes and ventilation). OxSTaR, in collaboration with Helen and Douglas House, our affiliate Alex Lee and Alison Sharrard from the Oxford University Hospitals Foundation Trust, Professor Charles Vincent and Bethan Page from the University of Oxford's department for Experimental Psychology and with support from the Health Foundation's Q Exchange funding programme, will undertake a project to pilot and spread ways to train parents and carers of children with medical complexity. parent-child-hands

Helen and Douglas House

This local charity provides hospice care for babies and children in Oxfordshire and surrounding counties. Paediatrician Emily Harrop and children's nurses Siobhan Butler and Colette Smith from the charity are supporting this project.

Find out more about Helen and Douglas House

Alex Lee & Alison Sharrard, OUH FT

Alex is an affiliate of OxSTaR and Consultant Paediatric and Neonatal Surgeon at the Oxford University Hospitals Foundation Trust. 

Alex Lee's profile.

Alison works for the Trust as a Clinical Nurse Specialist in paediatric surgical gastroenterology.

Experimental Psychology

From the Oxford Department of Experimental Psychology: Our mission is to conduct world-leading experimental research to understand the psychological and neural mechanisms relevant to human behaviour. Wherever appropriate, we translate our findings into evidence-based public benefits in mental health and wellbeing, education, industry, and policy. 

More information about Experimental Psychology

Charles Vincent's profile

Bethan Page's profile

Health Foundation - Q Exchange programme

The programme creates links between those leading improvement work and others who can help champion, support and adopt potential ideas to accelerate.

More information about the the Q exchange programme.

Learn more about the project

Below is a video of the official launch event for our gastrostomy resources for parents. In this video you can meet some of the team and learn more about the project aims and the impact these resources are having on families:

Official launch event